Favorites

These are some of my favorite blogs and websites. Please check them out!

Intense Intestines

Newbieostomy

Laughing Today

Adventures with an Ileostomy

My Kare Kit

Life With a Pouch

The Phoenix

Uncover Ostomy

Life Takes Guts

Great Comebacks

IDEAS

The Gutless Cyclist

Living Bigger with a Colostomy

Activeostomates

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11 thoughts on “Favorites

    1. You bet. I just posted a link to your site. It is so great to hear from someone who likes active pursuits, creative projects and sewing! I enjoyed reading your story and love the belts!
      -Heidi

  1. I like your site and I really appreciate your LINKS page. So much that I liberally cloned your ideas and your links, and added to my own page 🙂 Seems we share a lot of background and attitude.
    -Paul

  2. The links are really helpful, Heidi! I’m updating my own link page and will be stealing a few of these!

  3. What a wonderful thing you have done in establishing and maintaining this site. My best friend has an ileostomy, and she has severe skin reactions to adhesives. I am trying to help her find some resources for alternative adhesives. When her skin reacts to the adhesive, it oozes, becomes an irritaated and painful red rash and the adhesive gives way to this, causing the bag to come loose. When this happens and the body fluids, stool and acid get in the mix, infection sets up and more pain. This also curtails much of her physical activity. Can you direct me to some reference sites for alternative adhesive/attachment sources? Any assistance would be so greatly appreciated. Thank you so much, and Congratulations on living your life so fully … and finding a way to help others do the same.

    1. Hi Sharlonna,

      Thanks for the great question. I am so sorry your friend is having such awful skin issues.

      Does your friend have access to a stoma nurse? That might be a good place to start for solving the skin dilemma. Whenever I have had skin issues, solving them was always a mix between suggestions from my nurse and experimentation with products.

      Otherwise, has your friend tried all the major brands of appliances? My skin reacted poorly to the adhesive in Coloplast wafers (though many say these are great for sensitive skin), but I do okay with Convatec. That is, except for the paper tape portion. I found I had to cut the manufacturer’s tape off and replace it with strips of 3M Medipore Tape. Some brands also have tapeless wafers, but for some reason these always peeled up on me due to their larger footprint and not being as flexible. Fortunately, I am not allergic to the inner non-tape adhesive part of my wafers. That would be trickier. Perhaps this is the part that your friend is allergic too. In that case, cutting off the tape wouldn’t help, but maybe using another brand would.

      The major appliance brands to try are: Coloplast, Convatec and Hollister. A couple of other lesser-known brands are: Cymed, Dansac, Marlen and Nu-Hope.

      Nu-Hope has a non-adhesive system, though I do not have experience with it: http://www.nu-hope.com/pdf/NuHopeNonAdhesiveOstomySystems.pdf

      I also picked up a brochure for this npn-adhesive product, though again, I have not tried it. http://www.rcscompany.com/rosie.html

      Some people have luck with skin protective sheets such as the ones in the link below. They go between the appliance and the skin. http://www.coloplast.com/products/ostomy/accessories/protectivesheets/

      You may try posting this question on the United Ostomy Associations of America’s forum: https://www.ostomy.org/forum/index.php. It is a very active forum and you would likely get a lot of suggestions.

      Best wishes to your friend. How lucky she is to have such a kind and caring friend as you to help her out.

      Take Care,
      Heidi

  4. Hey there this is somewhat oof off topic but I was wamting to know if blogs use WYSIWYG editors
    or if you have to manually code with HTML. I’m starting a blog soon but
    have no coding knowledge so I wanted to get advice from someone with experience.
    Any help would be greatly appreciated!

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